Useful Addresses: Contact a Family - for families with disabled children: information on rare syndromes and disorders

photo of a disabled child with a family member

Addresses and website links to support groups for specific conditions appear on the respective condition pages which can be found via the index of conditions. Addresses and website links to more generic organisations can be found in respective factsheets.

The Contact a Family Directory also contains the following pages of useful addresses:

On this website, the Helpful Organisations page of the Contact a Family Directory is expanded and appears under the Library and Information Service section.




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This is an extract from The Contact a Family Directory which has information on hundreds of conditions affecting both children and adults. Subscriptions are available for the paperback, CD-ROM and website versions of this resource.

This Web Site © Copyright, Contact a Family 2007.
Although great care has been taken in the compilation and preparation of this work to ensure accuracy, Contact a Family cannot accept responsibility for any errors or omissions. Any medical information is provided for education/information purposes. It should be noted that most information written about specific disorders includes the most severe scenario. Many individual cases may not display all the features mentioned and the degree of severity of the features that are displayed may vary a great deal between individual cases. You should obtain further information from your medical practitioner. Any links to external websites have been carefully selected but are provided without any endorsement of the content of those sites. Please refer to our detailed Legal page for more information.
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