Caring for a disabled child can sometimes be made easier with the use of certain aids and equipment.
Some items such as mobility aids or special beds are expensive and the range available is vast. This information is about the main sources of equipment and where to go for further advice.
The main sources of equipment are from the health service, your local authority's children's services or social services department and from the education department. We refer to the 'Health Authority.' In your area this might also be known as the Primary Care Trust or Health and Social Services Board/Trust if you live in Northern Ireland.
In general, social services are responsible for providing equipment for daily living and non-medical needs, and your health authority is responsible for providing equipment to meet nursing or medical needs. In addition, equipment to help a child access the curriculum may be arranged by a school or local education authority.
Both your local health authority and your local social services department provide aids and equipment to disabled people. Under section 2 of the Chronically Sick and Disabled Persons Act 1970 (England & Wales) and the equivalent legislation for Scotland and Northern Ireland a local authority has a duty to provide practical assistance and additional facilities designed to secure greater safety, comfort or convenience to those people assessed as needing them. In your area there may be a local agreement which clarifies who is responsible for different types of equipment.
In England you may find there is a Community Equipment Service (CES) - jointly funded by local health and social services departments. This is an initiative across health and social care to develop community equipment services. Further information about this initiative can be found on the Department of Health website, Web: http://www.icesdoh.org/about.asp
In the first place, you should contact your social worker if you have one or contact your GP and tell them about the kind of help you're looking for. You can also approach other healthcare or personal care professionals such as the district nurse, physiotherapist or school nurse.
An Occupational Therapist (OT) or Social Worker will usually visit you in your home to discuss the situation further and carry out the assessment. An OT is a professional who can advise on equipment for daily living and managing more easily within the home. When you're visited by the OT or Social Worker it is important that your needs as a carer and those of other family members are taken into account. This includes any health and safety concerns. If your child also needs equipment to help with medical or health needs then a joint assessment should be carried out and the social worker or OT may contact the community nursing service or your GP.
Where a need is identified, the Social Worker or OT must then consider ways of meeting that need. This may include practical advice about doing things differently in order to make things easier, providing aids and equipment, and/or arranging alterations to the house.