A parents' guide to direct payments in Scotland: Contact a Family - for families with disabled children: information on rare syndromes and disorders

photo of a disabled child with a family member

Last updated January 2008

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This Web Site © Copyright, Contact a Family 2007.
Although great care has been taken in the compilation and preparation of this work to ensure accuracy, Contact a Family cannot accept responsibility for any errors or omissions. Any medical information is provided for education/information purposes. It should be noted that most information written about specific disorders includes the most severe scenario. Many individual cases may not display all the features mentioned and the degree of severity of the features that are displayed may vary a great deal between individual cases. You should obtain further information from your medical practitioner. Any links to external websites have been carefully selected but are provided without any endorsement of the content of those sites. Please refer to our detailed Legal page for more information.
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