These are some tips for dads by dads. You may find contact with others who have gone through similar experiences as you a valuable source of support.
- You will be confused about your feelings – it is normal to feel hurt, angry and worried about the future
- Have confidence to ask for help and not to worry about what others think
- Speak up - keep asking questions
- Make use of local services like Carers Centre’s or Citizens Advice Bureau
- When you get the opportunity for time out, just take it
- If you don't look after yourself you will collapse and a lack of sleep may cause rows and stress
- It's important to look at the child not the condition; the same condition might mean varying disabilities in different children
- Give yourself a role, if you don’t you will be sidelined
- Be prepared to ask difficult questions, sometimes the answers are clear sometimes less so
- Try to be positive but also say you are upset when you are – you are allowed to be human
- You may need to make yourself unpopular with people who ‘don’t understand’ explain clearly that you are learning too
- Take time off from work
- Be strong and resolute for your partner, be a shoulder to cry on
- Be proud of your child and realise their potential
- It's hard to tell others about disability and why should we? It is sometimes best to let the child explain themselves
- Don't brush disability under the carpet
- Know your rights with your employer.
If you need more information