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This is a (printer friendly) extract from The Contact a Family website, which is one of the leading information resources for families of disabled children and those who work with them. The full online version of this page can be found at
http://www.cafamily.org.uk/families/parentparticipationhealthservices.html

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Planning and delivering health services that meet families’ needs

On this page we will be providing information material to support people involved in the commissioning and management of services. Scroll down to find out more. We will be adding to it over the course of the year. Topics include:

  • Improving access to health services for families of disabled children
  • Improving paediatric wheelchair services
  • Improving continence services

Improving access to health services for families of disabled children

Problems and Solutions download a summary of problems families commonly experience in visiting the GP/clinics/hospital and ways to get around them

Hospital passports - working with parents
Bristol Children’s Hospital has developed an online hospital passport for children and young people with disabilities.

Addensbrooke hospital has developed two passports, one for children and young people with additional needs, and another for adults as well as pictures to assist staff communicating with people who find it difficult to speak.

Improving the hospital experience for people with learning disabilities This report from the NHS East of England and its accompanying materials has been developed to improve acute hospital services provided for adults with a learning disability and adults with autism. Much of it is also relevant for children and young people with additional needs.

Improving paediatric wheelchair services

Contact a Family working with NHS East of England recently consulted with parents about their experience of wheelchair service - see what they said here

Following this consultation parents and professionals worked together to develop the Key Features of an Effective Service – you can download their findings here

Parents worked with a Primary Care Trust to specify their requirements for a wheelchair service – you can download a sample specification of this service here.

Download and read our wheelchair 'Any Qualified Provider' briefing paper

Improving continence services

Download our briefing paper on continence services. The document contains:

  • a summary of problems families commonly report about continence services and how their solutions
  • information for forums from areas which are rolling out 'Any Qualified Provider' in continence services over the next few months
 


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