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National support groups usually spring up from one parent or more who has struggled to find information and/or support for a particular condition, it could be that the condition is rare, or perhaps nobody has wanted to set up a group previously.

Contact a Family are aware of the value that support groups have to the families they support and are happy to offer support to parents wishing to start a group from scratch or those who have been offering support for many years and are looking for information on a particular issue.

• Resources for local and national support groups leaflet

How we can help

We offer support in a number of ways:

• A dedicated groups officer

Whatever the condition, Contact a Family can give your group access to a dedicated officer who can answer your questions on a wide range of topics such as how to get started, attracting and keeping members and fundraising.

• Group action pack guides

Our group actions pack guides give information on a wide range of different aspects of running a support groups

• The Contact a Family Directory

We produce a directory of medical conditions. The contact details of national groups can be listed in our directory, if appropriate.

• The Contact a Family database

Your details will be held on our database, which is used by the helpline and the local offices to direct enquirers looking for groups who provide either general support or support for a specific condition.

• Connected

All groups can receive a free copy of Connected, our quarterly magazine.

• E-newsletters

We produce regular e-newsletters, on general news, parent participation and rare disorders. You can sign up to receive the newsletters for free. If you do not have regular website access copies can be posted out.

Contact us

If you have a question about starting or running a parent group in your local area, or you would like more information about the network scheme Tel, 020 7608 8700 or e-mail: info@cafamily.org.uk