Parent carer participation

In this section, you can find out how you can get involved in improving local services through parent carer participation.

You might also be interested in meeting other parents by joining a local support group.

What is parent carer participation?

Parent carers can help pinpoint problems frequently experienced by families with disabled children. This knowledge is useful to professionals to help them improve how children's services are delivered so they better meet families' needs.

Parent carer participation is when parents and professionals work together, recognising each other's expert knowledge, to make informed decisions about children's services that make the best use of people's time and money.

How we support parent carer participation

Over the last ten years, we have supported the development of the parent carer participation agenda and the development of local parent carer forums across England.

We work in partnership with the National Network of Parent Carer Forums (NNPCF).

Find out more about our work with parent carer participation:

Read resources and case studies to help your forum participate in different service areas:

See our general support for parent carer forums:

If you want to find out more about our work supporting parent carer participation, contact Helen Reid by emailing

View our list of regional parent carer participation advisers [PDF] to find support in your area.