People from families with genetic diseases or conditions are invited to help with the wording of a questionnaire. The questionnaire will be used in new research being carried out into developing ways of measuring how people with genetic diseases or conditions may benefit form seeing a geneticist/genetic counsellor or attending a genetics clinic. Read More...
The network aims to promote the contribution of parents and carers to the development and implementation of the Child Health Strategy for Cheshire and Merseyside. It aims to bring together people's views and experiences and feed these into strategy development. Read More...