Contact a Family West Midlands undertook an eight month project during 2003/2004 to help parents of children under 5 years of age with rare conditions access mainstream early years services in Birmingham.
Parents' views were sought on their experiences of using mainstream services, through postal and telephones surveys and a workshop specifically for parents of children with rare disorders. This report gives messages from parents of children of rare disorders to staff working in Early Years settings.
The results of consultation with families of disabled children in the Birmingham area to find out their views on existing services and what new or expanded services and support they would like.
Families were involved in the consultation through a postal survey, family fun events, a parents forum and targeted work to find the needs of hard to reach groups such as traveller families and minority ethnic groups.
This report is based on the research of Action for Leisure and Contact a Family West Midlands. In response to requests from parents across the region, we started to explore the inclusive play and leisure opportunities for disabled children and young people.
The report places inclusive leisure in the wider context of recent policies and research and then focuses on the views and opinions of parents and children. The second part of the report looks at examples of good practice across the region and highlights the principles and practices that make the schemes successful at including all children.