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As well as producing our medical directory which has an a-z of conditions we can also help you to find additional medical information.
If you need additional information contact our Information Officer - Rare Disorders, Cheryl Lenny, e-mail: cheryl.lenny@cafamily.org.uk or contact our helpline. Please note, nobody in the organisation is medically trained. We are able to pass on information that has been verified by a trained medical professional, however, we are unable to give medical advice.
If you have any questions related to our website please contact the Web Editor, Serena Shani, e-mail: serena.shani@cafamily.org.uk or tel: 020 7608 8743