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This is a (printer friendly) extract from The Contact a Family website, which is one of the leading information resources for families of disabled children and those who work with them. The full online version of this page can be found at
http://www.cafamily.org.uk/medicalinformation/conditions/aboutthedirectory.html

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About the Directory

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The Contact a Family Directory 2008: The essential guide to medical conditions, disabilities and support, has patient friendly information for children and adults with disabilities, serious health conditions and rare disorders.

The Directory is the UK’s leading guide to disabilities and health conditions, including rare disorders.

  • includes information on over 1,000 different conditions
  • contains details of over 350 support groups and organisations
  • used by a wide range of professionals
  • entries written and verified by leading medical experts
  • details of regional genetics centres, children’s hospices and other key organisations
  • articles on patterns of inheritance, behaviour and screening
  • constantly updated and revised

It is available in paperback and electronic format online.

 

This Web Site © Copyright, Contact a Family 2008
Contact a Family, 209-211 City Road, London EC1V 1JN
Tel: (020) 7608 8700

Registered Charity No. 284912. Charity registered in Scotland No. SC039169
Company limited by guarantee, registered in England and Wales No. 1633333.
HM Revenue & Customs charity tax reference No. XN54769. VAT Reg. No. GB 749 3846 82