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22q11 Deletion syndromes

Is there support?

Max Appeal

15 Meriden Avenue
Stourbridge
DY8 4QN
Tel: 0800 389 1049 Freephone Helpline
Tel: 01384 821227
e-mail: info@maxappeal.org.uk
Web: http://www.maxappeal.org.uk

The Appeal is a National Registered Charity No. 1088432, established in 1999. It provides support for all forms of 22q11 deletions including DiGeorge syndrome, Velo-Cardio-Facial syndrome, Shprintzen syndrome and the 22q11 form of Opitz G/BBB syndrome. It offers contact with other families and has regional groups. It is developing international and research links. It publishes a quarterly newsletter and has a wide range of information available, details on request. The Appeal has over 470 members and also has an office in Bristol full details of which can be found on their website.

Group details last updated January 2010.

View Inheritance patterns and prenatal diagnosis Inheritance patterns and prenatal diagnosis

Medical text written August 2003 by Dr A Habel, Consultant Paediatrician, Great Ormond Street Hospital, London, UK.

 

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