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Bannayan-Riley-Ruvalcaba syndrome
Is there support?
c/o Contact a Family
209-211 City Road
London
EC1V 1JN
Tel: 0808 808 3555 Freephone Helpline
Tel: 0808 808 3556 Text
Tel: 020 7608 8700 Admin
Fax: 020 7608 8701
e-mail: michelle@hoskins25.fsnet.co.uk
The Network is a small parent support group. It provides support by letter, e-mail and telephone and has information available, details on request. The Network has access to a medical adviser and is in touch with approximately 10 families. Researchers are thought to have been in touch with 20 families in the UK.
Group details last confirmed November 2007.
Inheritance patterns and prenatal diagnosis
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makingcontact.org
Pounds for parents
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