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Bardet-Biedl syndrome
Is there support?
10 High Cross Road
Rogerstone
Newport
NP10 9AD
Tel: 01633 718415
e-mail: chris.humphreys4@ntlworld.com
Web: http://www.lmbbs.org.uk
The Society is a National Registered Charity No. 1027384, established in 1987. It offers: support and advice to families by telephone, letter and email; and contact with other families. Activities include raising awareness of the condition, an annual family conference and fundraising. It publishes a twice yearly newsletter and conference report in print, on audio cassette and available to download from their web page. It has information available, details on request. The Society represents over 200 families.
Group details last confirmed April 2009.
Inheritance patterns and prenatal diagnosis
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Contact a Family, 209-211 City Road, London EC1V 1JN
Tel: 020 7608 8700
Registered Charity No. 284912.
Charity registered in Scotland No. SC039169
Company limited by guarantee, registered in England and Wales No. 1633333.
HM Revenue & Customs charity tax reference No. XN54769. VAT Reg. No. GB 749 3846 82
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