Brain Tumours
Is there support?
25 Ann Street
Edinburgh
EH4 1PL
Tel: 0131 466 3116 Befriender Line (Answerphone)
e-mail: via website
Web: http://www.braintumouraction.org.uk
Brain Tumour Action is a Scottish Charity No. SCO21490, established in 1993. It offers help and support to people living with a brain tumour and their carers. It has established a telephone befriending service and has support groups throughout the UK. Brain Tumour Action publishes a newsletter twice a year and an extensive range of information, details on request.
Group details last updated April 2009.
Tower House
Latimer Park
Latimer
Chesham
Bucks
HP5 1TU
Tel: 0845 4500 386 (Helpline)
Tel: 01494 549 180
e-mail: enquiries@braintumouruk.org.uk
Web: http://www.braintumouruk.org.uk
Brain Tumour UK is a National Registered Charity No. 1117538, registered in 1997 and a Company Registered in England No. 5983336. Through its website, National Helpline, local support groups and Phone Pals scheme Brain Tumour UK provides vital support and information to anyone whose life has been touched by the devastating diagnosis of a brain tumour. It also raises funds and campaigns for more research, better care and treatments. It publishes a newsletter three times a year which is sent to over 3000 contacts and hosts annual conferences for patients, families and scientists.
Group details last confirmed July 2009.
Saddlers House
100 Reading Road
Yateley
Hampshire
GU46 7RX
Tel: 0845 130 9733
Fax: 0845 130 9744
e-mail: patientinfo@sdbtt.co.uk
e-mail: enquiries@sdbtt.co.uk
Web: http://www.braintumourtrust.co.uk
The Trust is a National Registered Charity No. 1060627 and a Company Limited by Guarantee No. 05615995, established in 1996. It is the largest dedicated brain tumour charity in the UK. It raises awareness and funding for brain tumour research. It also offers information and support to patients diagnosed with a brain tumour and their families. The Trust also publishes a newsletter, organises conferences. Support groups have been set up and meet regularly. Please contact the Charity for more information.
Group details last updated July 2009.
An accredited/recognised specialist centre with the correct experts is a member of the UK Childrens Cancer Study Group (see entry Cancer), from where the addresses can be obtained. These addresses are also available from the Directory of Cancer Specialists published by the National Cancer Alliance (see entry Cancer).
Inheritance patterns and prenatal diagnosis