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Is there support?
Support Groups for children and families:
62 Walter Road
Swansea
SA1 4PT
Tel: 01792 480500 (Mon-Fri, 9.30am-4.30pm)
Fax: 01792 480700
e-mail: enquries@christianlewistrust.org
Web: http://www.christianlewistrust.org
The Trust is a National Registered Charity No. 1113821 established in 1989. It offers a philosophy of child centred care focusing on ‘quality of life’ issues, a range of family support services, bereavement support, self-help support groups, play therapists and holidays.
Group details last updated January 2009.
Griffin House
161 Hammersmith Road
London
W6 8SG
Tel: 0117 311 2600
Tel: 0800 197 0068 Helpline (Mon-Fri, 9am-5pm)
Fax: 020 8752 2806
e-mail: helpline@clicsargent.org.uk
Web: http://www.clicsargent.org.uk
CLIC (Cancer and Leukaemia in Childhood) joined with Sargent Cancer Care for Children to become CLIC Sargent, National Registered Charity No. 1107328. CLIC Sargent provides support to children and young people (up to age 25) with cancer and leukaemia and their families through: clinical and care professionals (specialist nurses, social workers, youth workers and play specialists to provide care, support and advocacy to children and young people with cancer and their families in hospital and at home); homes from home (homes allowing parents, children and siblings to stay together near the hospital); holidays (free opportunities for families to take a break from treatment in supported settings); care grants (grants to help families cope financially); and research (research projects working to identify causes and treatments of childhood cancer and also looking at managing the many side effects that treatment impose on children which can have significant impact on their future lives).
Group details last updated February 2010.
3rd Floor
98 Newman St
London
W1T 3EZ
Tel: 020 7612 0370
Fax: 020 7612 0371
e-mail: tct@teenagecancertrust.org
Web: http://www.teenagecancertrust.org
The Trust is National Registered Charity No. 1062559, established in 1997. It focuses on the particular needs of UK teenagers and young adults with cancer, leukaemia, Hodgkin’s and related diseases. The Charity designs and builds dedicated adolescent cancer units in hospitals. It funds and organises support and information services for patients, their families, schools and health professionals.
Group details last updated December 2009.
University of Leicester
3rd Floor
Hearts of Oak House
9 Princess Road West
Leicester
LE1 6TH
Tel: 0116 249 4460
Fax: 0116 254 9504
e-mail: info@cclg.org.uk
Web: http://www.cclg.org.uk
The CCLG is a national professional body responsible for the organisation of the treatment and management of children with cancer in the UK. The Group’s main remit is the co-ordination of national and international clinical trials, including biological studies. Other areas of activity include production of a range of information materials for patients and families, also found on the CCLG website, including ‘Contact’, a quarterly, free magazine for families of children and young people with cancer.
Group details last updated December 2009.
SDVS
131-141 North Walls
Stafford
ST16 3AD
Tel/Fax: 01785 603763
e-mail: ro@naccpo.org.uk
Web: http://www.naccpo.org.uk
The National Alliance of Childhood Cancer Parent Organisations (NACCPO) is a National Registered Charity No.1090871, established in 1999. It is an umbrella group which has 36 member groups around the UK supporting children and young adults with cancer and their families. NACCPO acts as a ‘voice’ for the families of children and young people with cancer advising charities and medical bodies on the needs of those affected by such a diagnosis, advocates for better facilities at treatment centres and helps to set up parent-run support groups. NACCPO also offers help and advice to families who do not belong to a support group and who may be in need of information and support such as where to find holidays, wish-granting charities and access to grants.
Group details last updated February 2010.
Support Groups for adults:
Cancerbackup merged with Macmillan Cancer support (details below) in 2008.
Group details last updated February 2009.
89 Albert Embankment
London
SE1 7UQ
Tel: 0808 808 2020 Macmillan CancerLine (Mon-Fri, 9am-9pm)
Tel: 0808 800 1234 Medical advice line (Mon-Fri, 9am-8pm)
Tel: 0808 808 0800 Youth line (12-21 year olds)
Tel: 0808 808 0100 (Hindi)
Tel: 0808 808 0101 (Punjabi)
Tel: 0808 808 0102 (Urdu)
Tel: 020 7840 7840
Fax: 020 7840 7841
e-mail: cancerline@macmillan.org.uk
Web: http://www.macmillan.org.uk
Macmillan Cancer Support is a National Registered Charity No. 261017, established in 1911. It works to improve the lives of people affected by cancer through the provision of practical, medical, emotional and financial support and pushes for better cancer care.
Group details last updated February 2009.
The Great Barn
Godmersham Park
Canterbury
CT4 7DT
Tel: 01227 738279 (Mon-Fri 9.30am-5.30pm)
e-mail: andrew@rarercancers.org.uk
Web: http://www.rarercancers.org.uk
The Forum is a National Registered Charity No. 1109213, established in 2001. The Forum works to raise awareness of the rarer cancers to health professionals and the general public. It also aims to improve services and reduce isolation in affected individuals.
Group details last updated December 2009.
There are also support networks for Lymphoma, Neuroblastoma and Retinoblastoma.
There are a number of very supportive local self help groups around the country. If you want to contact one of these and have been unable to do so through the organisations in this Directory please get in touch with Contact a Family.
This Web Site © Copyright, Contact a Family 2010
Contact a Family, 209-211 City Road, London EC1V 1JN
Tel: 020 7608 8700
Registered Charity No. 284912.
Charity registered in Scotland No. SC039169
Company limited by guarantee, registered in England and Wales No. 1633333.
HM Revenue & Customs charity tax reference No. XN54769. VAT Reg. No. GB 749 3846 82
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