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Cardiofaciocutaneous syndrome
Is there support?
There is no support group for Cardiofaciocutaneous syndrome in the UK. However, details of the UK contact person for the world wide CFC International http://www.cfcsyndrome.org can be obtained from Contact a Family's Freephone Helpline. Cross referrals to other entries in the Contact a Family Directory are intended to provide relevant support for these particular features of the disorder. Organisations identified in those entries do not provide support specifically for Cardiofaciocutaneous syndrome. Families can use Contact a Family's Freephone Helpline for advice, information and, where possible, links to other families. Contact a Family's web-based linking service Making Contact.org can be accessed at http://www.makingcontact.org.
Inheritance patterns and prenatal diagnosis
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Pounds for parents
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