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Chronic Granulomatous Disorder

Is there support? 

CGD Research Trust

Manor Farm
Wimborne St. Giles
Wimborne
BH21 5NL
Tel: 01725 517977
e-mail: cgd@cgdrt.co.uk
Web: http://www.cgd.org.uk

The Chronic Granulomatous Disorder (CGD) Research Trust is a National Registered Charity No. 1003425, established in 1991 to raise money and boost funds to find improved treatments and a cure for this rare genetic blood disorder. It offers support and a point of contact between families. The CGD RT works to raise awareness of CGD among the medical profession and fund two clinical nurse specialists, one paediatric and one adult. They offer a clinical psychology service for affected individuals and their families. The Trust runs conferences and workshops for health professionals and holds fun days and get-togethers for affected individuals and their families. It has twice yearly newsletters and has information available, details on request. The Trust is in touch with approximately 235 families. The CGD RT is the founder member of the annual Jeans for Genes Campaign.

Group details last updated January 2010.

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