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Congenital Central Hypoventilation syndrome

Is there support?

CCHS Support Group

24 Larners Road
Toftwood
Dereham
NR19 1LE
Tel: 01362 696509
e-mail: cchssupp@hotmail.com

This is a support network, established in 1995 for the families of children with Congenital Central Hypoventilation syndrome. It offers support by telephone and letter and attempts to link families where possible. It has information available, details on request, please send SAE. There are thought to be up to 30 affected families in the UK.

Group details last confirmed February 2008.

View Inheritance patterns and prenatal diagnosis Inheritance patterns and prenatal diagnosis

 

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