Congenital Hyperinsulinism
Is there support?
17 Bridge End Lane
Great Notley
Braintree
CM77 7GN
Tel: 01376 528569
e-mail: juliakill@tiscali.co.uk
Web: http://www.hi-fund.org
The group works under the Children's Hyperinsulinism Fund which is a special trustee fund of the GOSH (Great Ormond Street Hospital) children's charity and was, established in 2003 as no research was being carried out in the UK into the condition. The group offers a listening ear to families, an occasional newsletter and has information about the condition, details on request. It is advised by a consultant at the Institute of Child Health/Great Ormond Street Hospital and has over thirty families in contact.
Group details last updated April 2008.
Inheritance patterns and prenatal diagnosis