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Costello syndrome
Is there support?
90 Parkfield Road North
Manchester
M40 3RQ
Tel: 0161 682 2479
e-mail: c.stone8@ntlworld.com (UK)
e-mail: lschoyer@ladhs.org (US)
Web: http://www.costellokids.org.uk
The UK section of the International Costello Syndrome Support Group is a National Registered Charity No. 1085605, established in 2001. It offers support by phone, e-mail and letter. They also link families by e-mail, through their internet Listserv. It has a large amount of information available online or by request. The group is in touch with over 160 families around the world and organises international conferences bi-annually. The US section, Costello Syndrome Family Network (CSFN), is a registered non-profit organisation.
Group details last confirmed October 2007.
Inheritance patterns and prenatal diagnosis
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