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Cystic Fibrosis
Is there support?
11 London Road
Bromley
BR1 1BY
Tel: 0845 859 1000 CF Trust Helpline
Tel: 020 8464 7211 CF Trust
Fax: 020 8313 0472
e-mail: enquiries@cftrust.org.uk
Web: http://www.cftrust.org.uk
The Trust is a national registered charity No. 1079049, established in 1964. It offers support and information to anyone affected by Cystic Fibrosis. It funds research, offers some financial support to families and campaigns for improved services. It publishes CF Today, CF Talk (for adults with CF) and Focus on Fundraising, distributed free of charge, and has a wide range of information available, including publications and consensus documents on Cystic Fibrosis. Details on request or via the website.
Group details last confirmed May 2008.
Barnardos Sherwood Project
2 Clinton Avenue
Nottingham
NG5 1AW
Tel: 0115 969 1177
Barnardos Orchard Service (Cystic Fibrosis)
Orchard House
Buston Terrace
Jesmond
Newcastle on Tyne
NE2 2JL
Tel: 0191 240 4813
e-mail: orchard.project@barnardos.org.uk
Barnardos also run some regional services for children and young people with cystic fibrosis. Each service varies slightly in the support it offers. Referral varies slightly according to the support offered.
Group details last updated August 2006.
Swanston Steading
109/3b Swanston Road
Edinburgh
EH10 7DS
Tel: 0131 445 5590
e-mail: info@butterflytrust.org.uk
Web: http://www.butterflytrust.org.uk
The Trust offers emotional and practical support to people with Cystic Fibrosis including supporting statements on a range of issues, help to obtain benefits and grants, and advocacy and representation at Disability Appeals Tribunals. They also offer transport to hospital appointments and a youth befriending service. The Butterfly Trust's services are delivered by a national team of trained volunteer support workers. The Trust responds to the estimated 700 people in Scotland with Cystic Fibrosis.
Group details last updated April 2008.
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