|
|
|
|
||||
Dyskeratosis Congenita
Is there support?
Professor Inderjeet Dokal
Chair of Paediatrics and Child Health
Academic Department of Paediatrics
Institute of Cell and Molecular Science
Barts and The London
School of Medicine and Dentistry
4 Newark Street
London E1 2AT
Tel: 020 7882 2205
Fax: 020 7882 2195
e-mail: i.dokal@qmul.ac.uk
The Society is a family contact group started in 1996. It offers contact between affected families by telephone and letter. It promotes the Dyskeratosis Congenita Registry, an international registry of affected persons with the aim of co-ordinating a clinical service and expediting research. It has information available, details on request.
Group details last updated May 2008.
Inheritance patterns and prenatal diagnosis
Donate Now
makingcontact.org
Pounds for parents
Subscribe to the 