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Ellis-Van Creveld syndrome
Is there support?
Mrs Yvonne Sutton
Farthingale Farm
Hackmans Lane
Purleigh
Chelmsford
CM3 6RW
Tel: 01621 829675 (evenings)
The Foundation is a self help group, established in 1991. It offers support and advice to the families of affected children. It raises awareness of the condition through contact with professionals and compiles data on affected children to support research into the condition. The Foundation has information available, details on request. There are 14 known affected families in the UK.
Group details last confirmed October 2007.
An independent web site providing information and facilitating parent-parent networking.
Inheritance patterns and prenatal diagnosis
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