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Facioscapulohumeral Muscular Dystrophy

Is there support?

FSH-MD Support Group

c/o Muscular Dystrophy Campaign
61 Southwark Street
London
SE1 0HL
Tel: 020 8950 7500
Fax: 020 8950 7300
e-mail: fshgroup@hotmail.com
Web: http://www.fsh-group.org

The Group is a Self Help Group, established in 1986. It offers support for affected families and links affected persons where possible. It publishes a newsletter and has information available, details on request. The Group is in touch with 400 families.

Group details last confirmed February 2009.

As Facioscapulohumeral MD is a form of muscular dystrophy, advice and information about the condition is also available from the Muscular Dystrophy Campaign (see entry, Muscular Dystrophy and neuromuscular disorders)

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