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Fanconi Anaemia
Is there support?
Tel: 0115 926 9634 (24 hour answerphone)
The Group is a contact group, established in 1989. It encourages fundraising for F.A.B. UK's Family Comfort Fund. The Group responds to affected families and professional workers nationally and internationally. Advice and information available on nutrition and diet which supports those with F.A. Works closely with Fanconi Hope.
Group details last updated September 2010.
6 Derwent Avenue
Water Lane
Huttons Ambo
York
YO60 7HG
Tel: 07939 593993
Email: fanconi@hotmail.co.uk
http://www.fanconisupport.info
The Group is a Registered Charity in England and Wales No. 1135020, established in 2010. Its main focus is providing support and information to families with children affected by Fanconi anaemia through their website, Facebook, a newsletter and family events. It also works to raise awareness of this condition and the needs of families with children affected by this condition.
Group details last confirmed April 2010.
PO Box 905
Southsea
Hampshire
PO1 9JG
Tel: 0845 271 2811
Email: via website
http://www.fanconi.org.uk
The Group is a Registered Charity in England and Wales No. 1126894, established in 2007 by families affected by Fanconi anaemia and clinicians with an interest in the condition. It raises money for research and family events and works with medical professionals to produce reliable information for families.
Group details last updated April 2010.
Inheritance patterns and prenatal diagnosis