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Hypothalmic Hamartoma
Is there support?
c/o Contact a Family
209-211 City Road
London EC1V 1JN
Tel: 01494 728564
e-mail: hhugsuk@hotmail.com
Web: http://www.hhugs.com
HHUGS UK (Hypothalamic Hamartoma Uncontrolled Gelastic Seizures) is a National Registered Charity No. 1098698 providing support by letter, telephone and e-mail. Families will be linked where possible and if requested. The group has information and access to medical advice and is in touch with over 20 families.
Group details last confirmed October 2006.
Inheritance patterns and prenatal diagnosis
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