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Joubert syndrome
Is there support?
c/o Contact a Family
209-211 City Road
London
EC1V 1JN
Tel: 0808 808 3555
e-mail: saidid@aol.com
Web: http://www.jsuk.btik.com
JSUK is a small web based network of families whose children have Joubert Syndrome. The group was founded in 2007 and all contact should initially be by email or via their website. They have medical information available, details on request. The group can also provide support for other related condition: Meckel-Gruber Syndrome, COACH Syndrome, Senior-Løken Syndrome, Dekaban-Arima syndrome and Varadi-Papp syndrome.
Group details last updated March 2008
Inheritance patterns and prenatal diagnosis
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