Krabbe disease
Is there support?
While there is no specific support group for families of children in the UK for this condition, information is available from Climb (see entry, Metabolic diseases) and support is available from a group of families under the umbrella of Climb.
Support for the dementia aspects of Krabbe disease in adults can be obtained from the Alzheimer's Society. There is no specific support organisation in the UK for adults with metabolic diseases.
Inheritance patterns and prenatal diagnosis