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Marinesco-Sjögren Syndrome
Is there support?
There is an online support group for this condition, Web: http://www.marinesco-sjogren.org e-mail: mss@marinesco-sjogren.org (information about the use of online groups is available in our 'Medical Information on the Internet: Seeking Quality' article). This group is moderated and refers affected adults, children and their families to relevant and trusted sources of information it also puts families in touch with one another. Their website has information on this condition endorsed by medical professionals. If you do not have internet access, please telephone our freephone helpline on 0808 808 3555.
Group details last confirmed August 2008.
Inheritance patterns and prenatal diagnosis
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