Norrie disease
Is there support?
There is no support group for Norrie disease. Cross referrals to other entries in the Contact a Family Directory are intended to provide relevant support for these particular features of the disorder. Organisations identified in those entries do not provide support specifically for Norrie disease. Families can use Contact a Family's Freephone Helpline for advice, information and, where possible, links to other families. Contact a Family's web based linking service Making Contact.org can be accessed at http://www.makingcontact.org.
Inheritance patterns and prenatal diagnosis