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Ohdo syndrome
Is there support?
36 Borrowdale Avenue
Gatley
Cheadle
SK8 4QF
Tel: 0161 428 8583
e-mail: patseville@btinternet.com
The Network was, established in 1997. It offers support by telephone and letter and linking families where possible. It has information available, details on request. Please send SAE. The Network is in touch with over 40 families. The network has a presence on facebook and offers a worldwide e-mail group at http://uk.groups.yahoo.com/group/ohdosyndrome
Group details last updated October 2009.
Information about the use of online groups is available in our 'Medical Information on the Internet: Seeking Quality' article.
Inheritance patterns and prenatal diagnosis
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