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Opitz-Kaveggia syndrome/FG syndrome
Is there support?
There is no support group for FG syndrome in the UK. Cross referrals to other entries in the Contact a Family Directory are intended to provide relevant support for those particular features of the disorder. Organisations identified in those entries do not provide support specifically for FG syndrome. Families can use Contact a Family's Freephone Helpline for advice, information and, where possible, links to other families. Contact a Family's web-based linking service Making Contact.org can be accessed at http://www.makingcontact.org.
There is a US based support group, FG Syndrome Family Alliance, Inc Web: http://www.fg-syndrome.org.
Group details last confirmed February 2008.
Inheritance patterns and prenatal diagnosis
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