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Opitz G/BBB syndrome
Is there support?
A support group for specific Opitz syndromes has not yet been established. However, a one-to-one linking system between parents who have children with Opitz G syndrome and Opitz-Frias syndrome is offered within Contact a Family. This service has been formulated and adapted to provide a confidential and sensitive service aimed to meet individual needs.
Only the form of Opitz G/BBB resulting from a chromosome 22q11 deletion is supported by the Max Appeal (see entry, 22q11 Deletion syndromes).
Further information and support for specific features of the syndromes are covered by cross referrals in the above text.
Inhertiance patterns and prenatal diagnosis
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