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PEHO syndrome
Is there support?
There is no support group for PEHO syndrome. Families can use Contact a Family's Freephone Helpline for advice, information and, where possible, links to other families. Contact a Family's web-based linking service Making Contact.org can be accessed at http://www.makingcontact.org
Currently Contact a Family is actively involved in facilitating the formation of UK condition specific support groups. If you would like to know more about this, please contact the Rare Disorders Team on 020 7608 8700 or e-mail: specific-cond@cafamily.org.uk We look forward to hearing from you.
Inheritance patterns and prenatal diagnosis
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