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Pallister Hall syndrome

Is there support? 

A support group for Pallister-Hall syndrome has not yet been, established in the UK. However, a one-to-one linking system between parents who have children with Pallister-Hall syndrome is offered within Contact a Family. This service has been formulated and adapted to provide a confidential and sensitive service aimed to meet individual needs.

A number of organisations provide information and support services about conditions which may be associated with Pallister-Hall syndrome. There are links to these organisations in the medical text.

Currently Contact a Family is actively involved in facilitating the formation of UK condition specific support groups. If you would like to know more about this, please contact the Rare Disorders Team on 020 7608 8700 or e-mail: specific-cond@cafamily.org.uk We look forward to hearing from you.

View Inheritance patterns and prenatal diagnosis Inheritance patterns and prenatal diagnosis

 

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