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Parkinson's disease

Psychological and behavioural characteristics

Psychological, emotional and social aspects
Where diagnoses of Parkinson's will probably have the most impact on a younger person with Parkinson's and their family is with regard to the psychological, emotional and social effects they experience.

As the condition occurs at an earlier age, the effect on a younger person's life and that of their family can be profound. Diagnosis often comes at a time when many young people are still leading a very active life, perhaps developing a chosen career and raising a family.

The period after diagnosis can often be a particularly difficult time. There can be many different and conflicting emotions. Many people feel devastated. Some feel relief that a name has been given to the problems they have, particularly if they have had trouble getting a diagnosis. Others try to cope by trying to deny what is happening. Others hide it or have trouble telling their families or friends. Many people feel angry or ask 'Why me?' Many people also feel anxious and depressed.

Communication difficulties, loss of self-esteem and confidence can have a marked affect on the person's relationships and social life. There can be a tendency to withdraw from social activities and relationships with family and friends may be affected. Some people experience problems with the emotional and sexual relationship with their partner. Many young people are also raising children and are concerned about the effect that the Parkinson's will have on their children.

Practical matters such as employment and finance are often also of greater concern to younger people. These include staying in work, paying mortgages, insurance and benefits.

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Medical text written October 2000 by the Parkinson's Disease Society. Approved October 2000 by the Parkinson's Disease Society Medical Advisory Board: Chair, Professor A Williams, Professor of Neurology, Queen Elizabeth Hospital, Birmingham, UK. Last updated June 2005 by the Parkinson's Disease Society. Approved June 2005 by the Parkinson's Disease Society Medical Advisory Board: Chair, Dr. Mahendra Gonsalkorale, Consultant Physician and Clinical Director, Hope Hospital, Salford, UK.

 

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