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Pierre Robin syndrome
Is there support?
There is currently no effective support group covering Pierre Robin syndrome. This medical description is retained for information purposes. However, the Cleft, Lip and Palate Association (CLAPA) may be able to link families (see entry, Cleft Lip and/or Palate). Families can also use Contact a Family's Freephone Helpline for advice, information and, where possible, links to other families.
Inheritance patterns and prenatal diagnosis
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Pounds for parents
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