Porphyria
Inheritance patterns and prenatal diagnosis
Inheritance patterns
Most of the porphyrias are inherited as dominant complaints with variable features and expressivity. One cutaneous porphyria (PCT) has a relationship to iron overload and the HFE gene that determines iron storage in haemochromatosis is frequently observed in patients with this disorder. Viral infections, such as hepatitis C, B and HIV may incidentally also provoke expression of PCT in predisposed individuals. Erythropoietic protoporphyria, which is principally a cutaneous porphyria, shows di-allelic inheritance. ALA dehydratase deficiency, a very rare acute porphyria exacerbated by exposure to light, is inherited as a recessive condition. Congenital porphyria is inherited as a recessive disorder.
Prenatal diagnosis
In severe cases of porphyria, prenatal diagnosis may be undertaken in selected families at risk.
How is it treated?
| Is there support? ![]()