Porphyria
Is there support?
136 Devonshire Road
Durham
DH1 2BL
Tel: 0191 3862146
e-mail: helpline@porphyria.org.uk
Web: http://www.porphyria.org.uk
The Association is a National Registered Charity No 1089609, established in 1999. It offers support to families and individuals affected by Porphyria. It publishes a newsletter twice a year and has information available, details on request. Please send SAE. The Association has over 250 individuals, family groups and interested medical professionals in membership.
Group details last confirmed February 2008.
Inheritance patterns and prenatal diagnosis