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Prader-Willi syndrome

Is there support?

Photograph of child

Prader-Willi Syndrome Association (UK)

125a London Road
Derby
DE1 2QQ
Tel: 01332 365676
Fax: 01332 360401
e-mail: admin@pwsa.co.uk
Web: http://www.pwsa.co.uk

The Association is a National Registered Charity No. 284583, established in 1981. It offers support, advice and contact with others. It organises multi-disciplinary training days for professional workers from health, education, social services and residential and community care. Local and regional group meetings are sometimes organised. It publishes a quarterly newsletter and has a wide range of information available, details on request. The Association has over 800 family members, over 200 adult members with Prader-Willi syndrome and over 800 professional members.

Group details last confirmed January 2010.

View Inheritance patterns and prenatal diagnosis Inheritance patterns and prenatal diagnosis

 

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Contact a Family, 209-211 City Road, London EC1V 1JN
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Registered Charity No. 284912. Charity registered in Scotland No. SC039169
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