Pseudoxanthoma Elasticum
Is there support?
15 Mead Close
Marlow SL7 1HR
Tel: 01628 476687
e-mail: pxeeurope@aol.com
Web: http://www.pxe.org.uk
PiXiE is a National Registered Charity No. 1055465, established in 1984. It offers help and encouragement to people with PXE and aims to raise awareness of PXE to the medical community and the general public. It has information about the condition, publishes a newsletter and hold meetings for members. PiXiE has over 500 members.
Group details last confirmed February 2008.
Inheritance patterns and prenatal diagnosis