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Rett syndrome
Is there support?
Langham House West
Mill Street
Luton
Beds
LU1 2NA
Tel: 01582 798910 (Mon-Fri 9am-5pm, 24hr answerphone)
Family Support Services: 01582 798911
Out of hours service: 07970 546653 (not 24hr)
Fax: 01582 724129
e-mail: info@rettsyndrome.org.uk
Web Site http://www.rettsyndrome.org.uk
The Association is a National Registered Charity No. 327309, established in 1985. It offers telephone support 7 days a week and has self-help support groups and a network of contact supporters. It publishes a quarterly magazine 'Rett News' and has a wide range of information available, details on request. The Association has over 1,000 members.
Group details last updated September 2008.
Blackthorn
12 Ailsa View
West Kilbride
KA23 9GA
Tel: 01294 829 100
e-mail: rettsyndrome@btconnect.com
Web: http://www.rettsyndromescotland.co.uk
The Association is a Scottish Registered Charity No. SCO16645, formerly known as the National Rett Syndrome Association. It offers support through correspondence, telephone and one to one contact where possible. It has a bereavement counsellor and holds Therapy Days and regular Open Clinics. It publishes a regular newsletter 'RS News' and has information available, details on request. The Association has over 100 members.
Group details last updated April 2008.
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