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Scleroderma

Is there support?

The Scleroderma Society

PO Box 581
Chichester
PO19 9EW
Tel: 0800 311 2756 Advice Line
Tel: 020 7000 1925
e-mail: info@sclerodermasociety.co.uk
Web: http://www.sclerodermasociety.co.uk

The Society is a National Registered Charity No. 286736, established in 1982. It offers support to all people with scleroderma, including families of children, by patient information leaflets, a telephone advice line, website with message board and e-mail. It has a number of area groups and contact persons. It publishes a quarterly newsletter and has information available, details on request. The Society responds to approximately 600 enquiries a year.

Group details last updated July 2008.

The Raynaud's Scleroderma Association

112 Crewe Road
Alsager
Stoke-on-Trent
Cheshire
ST7 2JA
Tel: 0800 917 2494 Helpline
Tel: 01270 872776 (office hours)
e-mail: info@raynauds.org.uk
Web: http://www.raynauds.org.uk

The Association is a National Registered Charity No. 326306, established in 1982 as the Raynaud's Association and renamed to include Scleroderma in 1990. The Association also covers associated conditions such as Vibration White Finger, Systemic Lupus Erythematosus, Erythromelalgia and Sjögren's syndrome. It offers support to families of affected children and adults. It publishes a quarterly newsletter and has a wide range of information available, details on request. The Association has around 6,000 members.

Group details last updated July 2008.

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