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Shwachman-Diamond syndrome
Is there support?
9 Tippett Close
Nuneaton
Warwickshire
CV11 4SU
Tel: 02476 345199
e-mail: enquiries@shwachman-diamondsupport.org
Web: http://www.shwachman-diamondsupport.org
The Group is a National Registered Charity No. 1081122, established in 2000. It offers support for affected persons and their families and promotes research initiatives. It aims to raise awareness of Shwachman syndrome among the medical profession, support agencies and the public. It offers an information booklet and bi-annual family conferences. The group has a medical advisory board.
Group details last updated January 2008.
Inheritance patterns and prenatal diagnosis
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