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Spinal Muscular Atrophy
Is there support?
Elta House
Birmingham Road
Stratford upon Avon
CV37 0AQ
Tel: 0800 975 3100 Helpline (families only)
Tel: 01789 267520
Fax: 01789 268371
e-mail: jennifer@jtsma.org.uk
Web: http://www.jtsma.org.uk
The Trust is a National Registered Charity No. 1106815, established in 1985. It offers support, information and contact with other families. The Trust has two outreach workers who can visit newly diagnosed families at home and a youth worker who supports teenagers and young adults. The Trust funds and promotes research into the causes, treatment and management of SMA. It can provide multi-sensory toy packs for babies diagnosed with Type I SMA. It publishes a quarterly newsletter 'Inspirations' and has a wide range of information available, details on request.
Group details last updated October 2009.
As spinal muscular atrophy is a neuromuscular disease advice and information about the condition is also available from the Muscular Dystrophy Campaign (see entry, Muscular Dystrophy and neuromuscular disorders)
Inheritance patterns and prenatal diagnosis
This Web Site © Copyright, Contact a Family 2010
Contact a Family, 209-211 City Road, London EC1V 1JN
Tel: 020 7608 8700
Registered Charity No. 284912.
Charity registered in Scotland No. SC039169
Company limited by guarantee, registered in England and Wales No. 1633333.
HM Revenue & Customs charity tax reference No. XN54769. VAT Reg. No. GB 749 3846 82
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