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Stiff Man syndrome

Is there support?

STIFF MAN SYNDROME SUPPORT GROUP

c/o Contact a Family
209-211 City Road
London
EC1V 1JN
Tel: 01482 868 881
e-mail: liz.blows@smssupportgroup.co.uk
Web: http://www.smssupportgroup.co.uk

The Group is a National Registered Charity No. 1099206, established in 1998 providing support, information and linking for affected individuals and their families in the UK. It produces a periodic newsletter. The Group also aims to raise awareness and assist with research. They are happy to hear from medical professionals and anyone else with an interest in this condition. The Group has over 90 members.

Group details last confirmed September 2008.

View Inheritance patterns and prenatal diagnosis Inheritance patterns and prenatal diagnosis

 

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This Web Site © Copyright, Contact a Family 2008
Contact a Family, 209-211 City Road, London EC1V 1JN
Tel: (020) 7608 8700

Registered Charity No. 284912. Charity registered in Scotland No. SC039169
Company limited by guarantee, registered in England and Wales No. 1633333.
HM Revenue & Customs charity tax reference No. XN54769. VAT Reg. No. GB 749 3846 82