TAR syndrome
Is there support?
Little Wings
Whatfield Road
Elmsett
Ipswich
IP7 6LS
Tel: 01473 657535 (8-9pm)
e-mail: tarsupportgroup@telia.com
Web: http://www.ivh.se/TAR
The group is a self help group which was started in 1986. It offers support and information about the syndrome and care issues. The group has a link list for families. It publishes occasional newsletters and leaflets, and holds a family day every two years. The group has over 50 families in membership worldwide.
Group details last confirmed September 2007.
Inheritance patterns and prenatal diagnosis