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Von Hippel-Lindau syndrome
Is there support?
c/o Contact a Family
209-211 City Road
London
EC1V 1JN
Tel: 01204 886112
e-mail: maryweetman@waitrose.com
Web: http://www.vhlcg.com
The Group is a support network, established in 1990. It offers a listening ear to affected individuals, their families and carers. An information pack can be requested by telephone or e-mail. The Group is in touch with over 50 families.
Group details last confirmed February 2008.
Inheritance patterns and prenatal diagnosis
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