A-Z Listings

Dictionary and Glossary

Cash Counts

Your one-stop shop for benefits advice

makingcontact.org

Get in touch with other families...

Subscribe to the Contact a Family Directory

This site complies with the HONcode standard for trustworthy health information: verify here.

The Contact a Family Directory 2011/12: The essential guide to medical conditions, disabilities and support, has patient friendly information for children with disabilities, serious health conditions and rare disorders.

A-Z listings

Our directory contains approximately 440 different entries on medical conditions. These are listed in the A-Z listings.

Contact a Family also maintains a database of specific conditions and rare disorders in addition to those listed in the Contact a Family Directory. If you are a family with a disabled child looking for specific information for which there is no entry in the Directory contact our freephone helpline, Tel: 0808 808 3555. For all other enquirers, call Contact a Family's UK office, Tel: 020 7608 8700 and you will be directed to the relevant Information Officer.

Condition entries and support groups

Each entry contains a medical description of the condition together with details of inheritance patterns and prenatal diagnosis.

This information is followed by details of the related support networks and groups, where available.

Please note that some groups are very small and are run by individuals or parents who offer one-to-one linking and mutual support between families. Some of the listed Contact Groups prefer to be reached in the first instance through Contact a Family. If users of The Contact a Family Directory have difficulty in contacting a support group, please telephone Contact a Family, Tel: 020 7608 8700.